On April 26, Sarah and I will be joining Team Gevity for the Great Strides walk on Siesta Key Beach in Sarasota. An annual event, these walks take place all over the United States, led by friends and family who are walking for a cure for Cystic Fibrosis.When I was in Virginia, I went to a CF Education Day with my son at UVA. It is not a kind of meeting that one would want to go to, but the more one can educate himself, the more one can understand and equip himself to care for the cystic fibrosis patient.
One of the highlights of the conference was an address by a physician from the Cystic Fibrosis Foundation. He spoke of new drugs that in the pipeline that could be approved as early as 2010. If approved, these drugs will make GREAT STRIDES toward the improvement of the health of the CF patient. A recent article in Business Week speaks of the excitement about this drug and the role that the CFF has played in getting the research done for this drug. I encourage you to read it. It is so encouraging to all those with CF, but especially for parents with young children who will benefit most from these new developments.
I read a post this morning by a young woman who has CF. I cried as I read her post. I think that she has expressed so well the feelings of many young people who have this life-shortening disease. Please read her post and leave a comment.
Many of you dear friends read my first post about Great Strides and so quickly made a donation, and I thank you all. I'm linking to my page again in case anyone new reads this post and would want to make a contribution.
