I often wonder what in the world I have to blog about, and then I make a comment on someone else's blog and think to myself, "That would make a good post."
Thursday night I attended a support group for patients and caregivers of people with myasthenia gravis. I was diagnosed with MG back in 1990 and was quite sick for a while. After a few years with the right medication, it has been under good control. (Most of the time) MG is an auto-immune neuro-muscular illness. It isn't terminal, neither is it a disease in which the muscles waste away.
When one has MG, fatigue causes certain muscle groups not to respond correctly. One of the noticeable symptoms of MG is droopy eyelids. Other symptoms are difficulty chewing and swallowing, double vision, slurred speech, breathing difficulties, and weakness in the limbs. Any or all of these symptoms can appear.
After all these years, I've learned to live with it. Right now, my main problems are in swallowing and occasionally by evening I have difficulty speaking well. Often it is noticeable only to me, but it is there nonetheless. It really isn't worth mentioning.
However, the other evening, there was a young couple there at the support group. The husband was diagnosed in January after experiencing several symptoms. His dear wife is expecting a baby this week. I am not sure if it is their first child or not. My heart just went out to them. He is so concerned about not being able to help around the house, and then, of course, there is his job. He was very soft spoken, and I didn't get exactly what he does, but it appears that it is some type of work where he can take breaks to rest a bit.
We have a wonderful doctor who attends each meeting, and he reminded this young man of the ADA and the fact that businesses have to accomodate disabilities. I'm hoping for the best for this couple. I wanted to embrace them and assure them that everything was going to be all right. And I'm sure it will be for them, but I know they must be scared to death, not knowing exactly what they're dealing with.
On a lighter note, there was one of those feel good articles in our newspaper that is just too good not to mention. A St. Bernard/Pyrennees mix was found on the streets by animal service and taken to the humane society. They cleaned him up, checked him out, and waited the necessary time for an owner to come claim him.
When no one did, they knew they would have to find a home for him. They received a call from a lady at an assisted-living facility who wanted to know if they had a big dog. It seems they were looking for one to their place, a dog who would be tall enough so that the folks in wheelchairs could put him easily. It seems to be a match made in heaven. What a nice valentine for this dog and the folks at the facility. Read about Liam here.