When I made the move to Virginia and then took an almost month-long trip out west, I thought I would blog a lot about those adventures, but so far I haven't. But this week is different. We've been celebrating Ella's ninth birthday. Those of you who have followed my blog for a long time have been along the journey of this lovely little girl.
As she celebrates this year, we are celebrating that new drugs are appearing on the scene that are making a real difference in the lives of those with cystic fibrosis. Recently a drug was approved that is targeted at Ella's mutation. While right now, it is only available for those twelve and over, trials are being done in children younger. We are so thankful that Ella has been very healthy and pray that this continues to be the case.
The highlight of her day on Sunday was a trip to Build-a-Bear with several of her friends. When they were done, all returned to Ella's house for a cookout and playing in the yard. In just a few days, she and her friends will be starting fourth grade. Can you believe it? Happy birthday, Ella.
11 comments:
Beverly--yes, happy happy birthday to this sweet special girl.
I think I have been one of those along for much of this journey. So glad you live close by now and get to continue to see her growing up/
A quick note on personal news--my son & his wife adopted a little girl in March. Such a blessing.
It looks like she had a fabulous birthday.
She's the perfect age for the Build a Bear, and ending her day with a cookout sounds wonderful to me.
I love hr sweet smile.
And I remember when Ella was born:-)
she is beautiful. Happy Birthday and I am so glad they are coming up with new drugs ..
Wonderful pictures Bev. Thanks for posting this. I have been overjoyed about the new drug.
How can Ella be nine! It's so good to hear about the new drugs. I'm sensing you're glad you moved!
I remember when she as born also!! Can't believe it had been 9 years. I pray that Ella enjoys good health until she is able to get he new drugs!!
Happy birthday to your darling girl. Such good news about the new drug developments.
Best,
Bonnie
Happy Birthday Ella, I remember when you were born. Hope your birthday was one big celebration. Just happened to stop by and wanted to say Hi to you and your Gramma. I've been her fried for a long time too!
What a lovely little girl! I too remember her when she was small - not newborn, but probably about a year or so.
Where does the time go? 9 years old!!! Happy birthday, sweet, lovely Ella. And I'm so glad Grandma lives close by, so she can watch you grow up.
Hugs, Bev and a huge hurrah for the new meds on the market.
What a lovely little girl! I too remember her when she was small - not newborn, but probably about a year or so.
Where does the time go? 9 years old!!! Happy birthday, sweet, lovely Ella. And I'm so glad Grandma lives close by, so she can watch you grow up.
Hugs, Bev and a huge hurrah for the new meds on the market.
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